strange days

Valentine's Day brought some unexpected happenings for the very youngest of the Harris Girls. While playing around on the trampoline waiting for Valentine's dinner, there was what seemed to be a minor accident. Dylan brought in the Hay, wailing and snot flying. I sat her down and checked her out as mom's are wont to do. She seemed fine. We had dinner, and while she ate almost nothing (typical), she did her usual jamming of dinner into whatever she happens to be drinking (very typical).

Bedtime came early, but sleep did not last. That night was spent with Hayden crying out and/or sobbing in her sleep. By about 3 am, I am convinced there is something wrong. I barely get the big kids off to school and call the doctor as soon as they open. The appointment set, I spend the morning with a very lethargic 2 year old (atypical).

At the appointment, x rays revealed that Hayden's tibia and fibula had been cleanly broken distally. I was shocked to leave the appointment with nothing more than a referral for an appointment with an orthopedic surgeon for this afternoon. No wraps. No splints. Nothing. Just instructions, "Don't let the leg hang; it will cause more pain and injure the area further.". Perfect!

epic fail

Mitchell's experimental treatment appears to have been just that.  He was officially taken off the gleevec and celebrex protocol as it was not having any impact on the cancer's growth.  He is being discharged from UMC this morning with 2 different types of morphine in pill form to help him with pain management.  There is talk of enrolling him in a clincial trial sometime this week, but first he needs to meet with Dr. Brown to go over whatever it is they need to review. 

I'm hoping the clincial trial administers the chemo through infusion.  Mitchell hasn't had much success with pills so far.  I'm also hoping that this episode helps to remind my spouse to be more responsive to the signals he gets from his body.  For people in his situation, things don't usually just "go away". 

new right now

Spent the day with Mitchell in the ER.  After a miserable night at home, I convinced him to go in.  Long story short...The ct scan they did today showed "significant" growth in numbers and size of lesions in his liver and a handful new metastases in both lungs as well as growth in those already present.  He was finally admitted late this evening.  The plan is to reintroduce liquids and food and then his meds and see whether or not he can tolerate them.  Not sure how long his stay will be.

Although I am not surprised at this news, it leaves me feeling hostility toward health care in general.  Perhaps if the insurance company would pay for scans at regular intervals for Mitchell, the oncologist would know in a more timely manner that a protocol wasn't working.  I also realize that  chances are slim to none that we will beat this cancer...Knowing that, shouldn't Mitchell be given the opportunity to extend his life while battling this disease as much as is medically reasonable?  And have a reasonable quality of life at that? 

The longer we are in this, the more medicine seems to be random shots in the dark and less science and logic based on evidence.  No one seems to really know anything with any kind of authority. 

more love-hate

Mitchell's MRI was read this morning, and everything is clear in his brain.  WHEW!  The headaches are definitely being caused by the abraxane. 

On a negative tip, the oncologist and a specialist have had an opportunity to compare Mitchell's last CT with the most recent PET scan.  The experimental treatment is not working.  His tumor markers have elevated since beginning the new treatment....So it's back to the drawing board so to speak.  The abraxane/avastin has been discontinued as of this morning.  Mitchell was supposed to have treatment on Friday, but it is being put on hold until Dr. Brown can consult with a colleague to decide what the next steps are. 

future

Tomorrow, Mitchell is scheduled to have another CT scan which will tell us whether or not the chemo has been working.